Three U.S. government agencies deserve special recognition for their support of Rare Disease Day. They are the Office of Rare Diseases Research of the National Institutes of Health, the Office of Orphan Products Development of the Food and Drug Administration, and the Social Security Administration.
NORD is grateful to the following Rare Disease Day Partners for grants that made possible the reception and bus to take patient organization representatives to the FDA Rare Disease Patient Advocacy Day:
- Alnylam
- Cytonet, LLC
Most of all, NORD expresses thanks to its European counterpart, EURORDIS, for sponsoring the first-ever Rare Disease Day. NORD and EURORDIS are working together throughout the year to improve the lives of people with rare diseases.