NORD salutes the following organizations, companies, professional societies, and government agencies for their support of Rare Disease Day 2012. We now have over 700 partners!
Government
- FDA Office of Orphan Products Development
- NIH Office of Rare Diseases
- Social Security Administration
Patient Organizations, Professional Medical Societies, and Industry
- 1p36 Deletion Support & Awareness
- A Better Place Dance and Fitness Studio
- A-T Children’s Project
- About.com Rare Diseases
- Accelerate Brain Cancer Cure
- Accentia Biopharmaceuticals, Inc
- Access Education
- Accord Alliance
- Accredo Health, Inc.
- ACD Association
- Aceras BioMedical, LLC
- Acid Maltase Deficiency Association
- ACOR (Association of Cancer Online Resources)
- Acorda Therapeutics
- Actelion Pharmaceuticals, Inc.
- Additional Kare for Kids, Inc.
- Adenoid Cystic Carcinoma Research Foundation
- Advanced Scripts
- Advancement of Research for Myopathies (ARM)
- Advocacy for Patients with Chronic Illness, Inc.
- Aegerion Pharmaceuticals
- AISSG-USA
- AKU Society of North America
- Alagille Syndrome Alliance
- Alexion Pharmaceuticals
- Allergan
- Allsup
- Allyson Whitney Foundation, Inc.
- Alnylam
- ALPHA Marketing, Inc.
- Alpha-1 Association
- Alpha-1 Foundation
- Alport Syndrome Foundation
- ALS Association-Greater Philadelphia Chapter
- Alstrom Syndrome International
- Alternating Hemiplegia of Childhood Foundation
- Alveolar Capillary Dyplasia Association
- American Academy of Dermatology Association
- American Autoimmune Related Diseases Association
- American Behcet’s Disease Association
- American Brain Tumor Association
- American College of Medical Genetics
- American Dystonia Society
- American Partnership for Eosinophilic Disorders
- American Porphyria Foundation
- American Self-Help Group Clearinghouse
- American Society for Matrix Biology
- American Syringomyelia and Chiari Alliance Project
- AmeriFace
- Amicus Therapeutics, Inc.
- AMSA UW Wisconsin chapter
- Amylin Pharmaceuticals, Inc.
- Amyloidosis Foundation
- Amyloidosis Support Groups
- Androgen Insensitivity Syndrome Support Group
- Androgen Insensitivity Syndrome Support Group USA
- Angel Flight East
- Angelman Syndrome Foundation
- Annett W. Snell Amyloidosis Foundation, Inc.
- APBD Research Foundation
- ApexMD.com
- Aplastic Anemia & MDS International Foundation
- Aplastic Anemia And Omid’s Mission Foundation
- APS Foundation of America, Inc.
- APSFA.org
- Arach Friends
- Arachnoid Cyst Awareness Organization (ACA)
- Arizona Hemophilia Association
- ARPKD/CHF Alliance
- Asbestos Disease Awareness Organization (ADAO)
- Ask Me About AIH (Autoimmune Hepatitis)
- Asociacion Mexicana De Cistinosis AC
- Association CMTC – Cutis Marmorata Telangiectatica Congenita
- Association for Frontotemporal Degeneration AFTD
- Association for Glycogen Storage Disease
- Association of Gastrointestinal Motility Disorders (AGMD)
- Association of Genetic Support of Australasia Inc
- Association Shifa des Maladies NeuroMusculaires (ASMNM)
- Astra Zeneca Pharmaceuticals LP
- Ataxia Telangiectasia Children’s Project, Inc
- Atlanta Judicial Circuit Probation
- Aton Pharma, Inc.
- Australian Lung Foundation
- Australian Paediatric Surveillance Unit
- Autoimmune Information Network
- Auxilium
- Avery’s Angels Gastroschisis Foundation
- Bannari Amman Institute of Technology
- Barth Syndrome Foundation
- Basal Cell Carcinoma Nevus Syndrome Life Support Network
- Batten Disease Support and Research Association
- Baxter BioScience
- Bayer Group
- Benign Essential Blepharospasm Research Foundation
- BensFriends.org
- Beyond Batten Disease Foundation
- BIO (Biotechnology Industry Organization)
- BIO Geeks – Science Club
- BioMarin Pharmaceuticals Inc.
- Blane Foundation
- BRAIN TRUST: The Healing Exchange
- Branchio-Oto-Renal Syndrome Awareness
- BraunSolutions.net
- Breath of Hope
- British Paediatric Orphan Lung Diseases (BPOLD)
- C.A.R.E.S. Foundation
- CADASIL
- Canadian Org for Rare Disorders CORD
- Carcinoid Cancer Foundation
- Carcinoid Information
- Cardio-Facio-Cutaneous International (CFC)
- Care-Aware
- Caregivers of New Jersey
- Caring for Carcinoid Foundation
- Caring Hands Sarcoidosis Network of Michigan
- Castleman’s Awareness & Research Effort
- CDG Family Network
- Celgene Corporation
- Center for Business Intelligence (CBI)
- Center for Ehlers Danlos Syndrome Alliance
- Center for Rare and Neglected Diseases, University of Notre Dame
- Central Arizona Rare DIsease Support
- Central Nervous System Vasculitis Foundation
- Centric Health Resources
- Cephalon Inc.
- Charcot-Marie-Tooth Association
- Charcot-Marie-Tooth Support Group of Upstate New York
- Chediak-Higashi Syndrome Association
- Children Against Hyperinsulinism
- Children with Spinal Muscular Atrophy Ukraine
- Children’s Cardiomyopathy Foundation
- Children’s Craniofacial Association
- Children’s Gaucher Research Fund
- Children’s PKU Network
- Children’s Tumor Foundation
- Children’s Rare Disease Network
- China-dolls Care and Support Association
- Chinese Rare Disease Organization
- Chordoma Foundation
- Chordoma Support Group
- Chorodoma Foundation
- Christian’s Conquest
- Chromosome 18 Registry and Research Society
- Chromosome 22 Central
- Chromosome Disorder Outreach, Inc.
- Chronic Granulomatous Disease Association, Inc
- Churg Strauss Syndrome Association
- Cicatricial Alopecia Research Foundation
- CISCRP
- CJD Aware!
- Clark and Daughtrey Medical Group
- Cleft Lip and Palate Foundation of Smiles
- Cleft Palate Foundation
- CLIMB National Information Centre for Metabolic Diseases
- Clinigen
- CLOVES Syndrome Community
- CMTC-OVM Cutis Marmorata Telangiectatica Congenita
- CMTUS
- Coalition for Heritable Disorders of Connective Tissue
- Coalition for Pulmonary Fibrosis
- Cockayne Syndrome Network (a.k.a. Share & Care)
- Cohen Syndrome Association
- Cohn & Wolfe
- Compass Healthcare Marketers
- Congenital Heart Information Network
- Congenital Hyperinsulinism International
- Connective Tissue Oncology Society
- Consortium of Multiple Sclerosis Centers
- Contact A Family
- Corcept Therapeutics
- Cornelia de Lange Syndrome Foundation
- Costello Syndrome Family Network
- CRB1.org
- CSL Behring
- Cure CMD
- Cure Dercum’s
- Cure JM Foundation (Juvenile Myositis)
- CureDuchenne
- CurePSP Foundation for PSP/CBD and Related Brain Diseases
- Cushing’s Support and Research Foundation
- Cutaneous Lymphoma Foundation
- Cutis Laxa Internationale
- Cystinosis Foundation
- Cystinosis Research Foundation
- Cystinosis Research Network
- Cytogenomics and Molecular Pathology, Washington University School of Medicine, St Louis
- Dana’s Angels Research Trust
- Dandy-Walker Alliance
- Daniella Maria Arturi Foundation, Research for the cure of Diamond Blackfan Anemia
- Darlington House
- Daystar for Medically Fragile Infants, Inc.
- DebRA of America, Inc.
- Department of Orthopaedic Surgery, Thomas Jefferson University College of Medicine
- Department of Pediatrics, University of Utah
- Dercum’s Disease Support Group
- Desmoid Tumor Research Foundation
- Diagnóstico Clínico y Molecular, DICLIM
- Diplomat Specialty Pharmacy
- DisabledCincinnati.org
- Discover Dysautonomia
- DNA Traits
- DonateGames.org
- Doose Syndrome Epilepsy Alliance// Turn the White House Purple for Epilepsy
- Dravet Syndrome Foundation
- Dravet.org
- Drewstock, Inc.
- Duchesnay Inc.
- Dyax Corp
- Dysautonomia Foundation, Inc.
- Dystonia Medical Research Foundation
- Dystrophic Epidermolysis Bullosa Research Association of Canada
- ECD Global Alliance
- Ehlers-Danlos National Foundation
- Ehlers-Danlos Network C.A.R.E.S. Foundation
- Eli Lilly and Company
- Emory University Genetics Laboratory
- Encephalitis Global, Inc.
- Engage Health, Inc.
- Enmedic clinic
- Enobia Inc.
- Epilepsy Foundation
- Errant Gene Therapeutics
- Erythromelalgia Association
- Esophageal Cancer Action Network, Inc.
- EURORDIS
- Evangel Temple Assembly of God Special Needs Ministries
- Expedition Awareness
- Express Scripts
- Fabry Support and Information Group
- FACES: The National Craniofacial Association
- Fagan Center for Communication
- Faith Technologies
- Families of Spinal Muscular Atrophy
- Family Caregiver Alliance
- Family Network TV
- Family Support Center of New Jersey
- Family Support Network of North Carolina
- Fanconi Anemia Research Fund
- Fat Disorders Research Society, Inc. (fatdisorders.org)
- Feinstein Kean Healthcare
- Fibromuscular Dysplasia Society of America (FMDSA)
- Fibromuscular Dysplasia Society of America
- Fibrous Dysplasia Foundation
- Filipiak Chiropractic Center
- First Response Medical Training
- FMD Chat
- Foundation Fighting Blindness
- Foundation for Angelman Syndrome Therapeutics
- Foundation for Better Health Care
- Foundation for Children with Atypical HUS
- Foundation For Ichthyosis & Related Skin Types(F.I.R.S.T.)
- Foundation for Mitochondrial Medicine
- Foundation for Prader-Willi Research
- Foundation for Sarcoidosis Research
- Foundation of Molecular Medicine
- FRAXA Research Foundation
- Freeman-Sheldon Research Group, Inc.
- Friedreich’s Ataxia Research Alliance (FARA)
- Friends of Casey
- Friends of Sammy-Joe Foundation
- Frontotemporal Lobar Degeneration Association
- Fundacion de Enfermedades Raras Metabolicas – Ecuador
- Fundación FOP
- GAMEYOGA
- GARD (Genetic and Rare Diseases Information Center, NIH)
- Gastroparesis Patient Association for Cures and Treatments
- GBS/CIDP Foundation International
- Genetic Alliance
- Genetic Support Council of Western Australia
- Genzyme Corporation
- Girl Power 2 Cure
- Gist Cancer Research Fund
- GIST Support International
- GlaxoSmithKline plc
- Global Genes Project
- Global Hydranencephaly Foundation
- Glut1 Deficiency Foundation
- GLUT1 Transporter Deficiency Syndrome
- Glycobiology Research and Training Center at the University of California, San Diego
- GlycoMimetics, Inc.
- GOLD, Global Organization for Lysosomal Diseases
- Good Shepherd Medical Center
- Grupo de Estudos de Doenças Raras
- Guard & Grow Enterprises
- Gwendolyn Strong Foundation
- HAE Canada
- Hannah’s Hope for Giant Axonal Neuropathy, Inc.
- Hayden’s Hope for FOP Research
- Helping Hands Club, Massasoit Community College
- Hemophilia Federation of America
- Hereditary Disease Circle
- Hereditary Disease Foundation
- Hereditary Hemorrhagic Telangiectasia HHT Foundation International
- Hereditary Neuropathy Foundation
- Hermansky-Pudlak Syndrome Network
- Hide and Seek Foundation for Lysosomal Disease Research
- Hidradenitis Suppurativa Foundation, Inc.
- Histio Heroes Research Fund
- Histiocytosis Association of America
- HJE Enterprise, LLC
- Hope for Hypothalamic Harmartomas
- Hospice and Healthcare Communications, LLC
- HPS Group LLC
- HS-USA
- Hudson Special Olympics
- Hunter’s Hope Foundation
- Huntington Disease Association
- Huntington’s Disease Society of America
- Hydrocephalus Association
- Hyperion Therapeutics
- Hyperion Therapeutics
- Hypoparathyroidism Association
- I Have IIH
- IDEA League
- IDEAS – IsoDicentric 15 Exchange Advocacy and Support
- IDIS Pharmaceuticals
- IDM Pharma
- IKARIA
- Illinois Department of Public Health, Genetics Program
- Illumina
- Immune Deficiency Foundation
- In Need Of Diagnosis, Inc. (INOD)
- Incontinentia Pigmenti International Foundation
- Infant Botulism Treatment and Prevention Program, California Department of Public Health
- Inspired Science and Research
- Institute for Rare and Neglected Diseases Drug Discovery
- Instituto de Medicina Genomica
- InterMune
- International Advocate for Glycoprotein Storage Diseases
- International Costello Syndrome Support Group
- International Cystinuria Foundation
- International Fibrodysplasia Ossificans Progressiva (FOP) Association
- International FOP Association
- International Foundation for CDKL5 Research
- International Myeloma Foundation
- International Rett Syndrome Foundation
- International WAGR Syndrome Association
- Internationial Castleman’s Disease Organization
- Intracranial Hypertension Research Foundation
- Intractable Childhood Epilepsy Alliance (ICE Epilepsy Alliance)
- Invisible Disabilities Association
- Iowa Ataxia Support Group
- Iron Disorder Institute
- Isis Pharmaceuticals
- ITP Foundation
- Jackson Gabriel Silver Foundation
- Jacob’s Cure
- Janet Liso Cancer Foundation
- Janine Sarcoidosis Outreach Foundation
- JBS International, Inc.
- Johnson & Johnson Pharmaceuticals
- Jonah’s Just Begun – Foundation to Cure Sanfilippo Inc.
- Jordanian Association for Healthy Education
- K-T Support Group
- Kakkis EveryLife Foundation
- Keck Graduate Institute
- Kennedy Krieger Institute
- Kennedy’s Disease Association
- KiP Magazine
- Kleine-Levin Syndrome Foundation
- Klippel-Trenaunay Support Group
- LAM Foundation
- LAM Treatment Alliance
- Lapidus Data LLC
- Les Turner ALS Foundation, Ltd
- LGS FOUNDATION
- Liam’s Land Organization, Inc.
- Liam’s Lighthouse Foundation
- Life Raft Group
- Living with Stiff Person Syndrome
- Living with Trisomy 13 – Patau Syndrome
- Locks of Love
- Lowe Syndrome Association, Inc.
- Lubkin Fund for MHE Research
- Lundbeck Inc.
- Lung Disease Support Group Inc.(LDSG Inc.)
- Lymphangiomatosis (LAM) Foundation
- Lymphangiomatosis and Gorham’s Disease Alliance
- Lymphatic Research Foundation
- Lynch Syndrome International
- Lysosomal Diseases New Zealand
- M-CM Network
- Maddi’s Hope (Abernethy Malformation)
- MAGIC Foundation
- Makrocare Clinical Research
- Malignant Hyperthermia Association of the United States
- Many Faces of Moebius Syndrome
- Marathon Pharmaceuticals LLC
- MarbleRoad
- Marcus Gunn Foundation
- Mark Krueger & Associates, Inc.
- Mark Morgan CPA, Inc.
- Mary Payton’s Miracle Foundation
- Massasoit Community College
- MassBio
- Mastocytosis Society
- Mastokids.org
- mctdHOPE
- MdDS Balance Disorders Foundation
- MDJunction.com Dercum’s Disease Support Group
- MDS Foundation
- Mead Johnson Nutrition
- Mebo Research, Inc
- MEBO Research
- Medco Health Solutions
- Medical Imaging Technologies
- Medicis Pharmaceutical Corp.
- Medtronic, Inc.
- Medunik Canada
- Melanoma Research Foundation/CURE Ocular Melanoma
- Melorheostosis Association
- Mercy Medical Airlift
- MHE and Me
- MHE Coalition
- MHE Research Foundation
- Midwest Women’s Vascular Advocates
- Milestones for Children
- Mission City Community Network Health Clinics
- Mississippi Deaf-Blind Project
- Mississippi Mended Little Hearts
- MitoAction
- MLD Foundation
- Moebius Syndrome Foundation
- Monarch Cares Rare Disease Cooperative
- mondoBIOTECH
- MOPIX-TC
- MPD Foundation
- MPN Research Foundation (Myeloproliferative neoplasms)
- MPS Jajax A.C.
- Mucolipodosis Type IV Foundation, Inc. (ML4)
- Mustang Insurance Agency
- Myasthenia Gravis Foundation of America, Inc
- Myocarditis Foundation
- Myositis Association
- Narcolepsy Network, Inc.
- National Adrenal Diseases Foundation (NADF)
- National Alliance for Thrombosis and Thrombophilia
- National Alopecia Areata Foundation
- National Ataxia Foundation
- National Coalition for Health Professional Education in Genetics (NCHPEG)
- National Eosinophilia Myalgia Syndrome Network
- National Foundation for Ectodermal Dysplasias
- National Fragile X Foundation
- National Hemophilia Foundation
- National Lymphedema Network
- National Marfan Foundation
- National Meningitis Association
- National MPS (Mucopolysaccharidoses/Mucolipdoses) Society
- National Multiple Sclerosis Society
- National Network of Libraries of Medicine, Pacific Southwest Region
- National Neutropenia Network
- National Niemann-Pick Disease Foundation
- National Niemann-Pick Disease Foundation
- National Organization for Albinism and Hypopigmentation (NOAH)
- National Patient Travel Center
- National PKU Alliance
- National PKU News
- National Rehab
- National Spasmodic Dysphonia Association
- National Spasmodic Torticollis Association
- National Tay-Sachs & Allied Diseases Association (NTSAD)
- National Tuberous Sclerosis Association
- National Urea Cycle Disorders Foundation
- NBIA Disorders Association
- NephroPlus
- Neurofibromatosis Network
- Neurofibromatosis, Inc., Northeast
- Neurofibromatosis, Inc., Northeast
- Neurofibromatosis, Inc.
- Neuromuscular Disease Foundation
- Niños de Hierro A.C.
- NN/LM Pacific Southwest Region
- NOMID Alliance
- NORD
- North American Malignant Hyperthermia Registry
- North Carolina CRPS/RSD Association
- Northstream Global Partners
- Novartis Oncology
- Novartis Pharmaceuticals
- Novo Nordisk
- NPS Pharmaceuticals, Inc.
- Nutra Pharma Corp.
- Nutricia North America
- Oak Factory
- OmniaVincit, LLC
- Onyx Pharmaceuticals Inc.
- Optherion Inc.
- Oregon Health & Science University Rare Disorders Research Consortium
- Organic Acidemia Association
- Orphan Europe
- Orphan Therapeutics
- Orphan’s Dream Foundation
- Osteogensis Imperfecta Foundation
- Our Promise to Nicholas Foundation
- Oxalosis and Hyperoxaluria Foundation
- Pachyonychia Congenita Project
- Paget Foundation for Paget’s Disease of Bone and Related Disorders
- Paley Advanced Limb Lengthening Institute
- Palo Alto Investors
- Pancreatic Cancer Action Network
- Parent to Parent of New Zealand, Inc.
- Parkinson’s Disease Foundation, Inc.
- Patient Commando
- Patient Crossroads
- Patient Services, Inc. (PSI)
- PC Project
- PCD Foundation
- PCM TRIALS
- Pediatric Adolescent Gastroesophageal Reflux Association
- Pediatric Orthopaedic Society of North America (POSNA)
- People Inc.
- Periodic Paralysis Association
- PFIC.org
- Pfizer Inc.
- Pharmaceutical Research and Manufacturers of America
- Phelan-McDermid Syndrome Foundation
- Phi Delta Chi
- Piedmont Editing Service
- PKS Kids
- PLAN
- Platelet Disorder Support Association
- PMD Foundation
- PMP Pals’ Network
- PMP Research Foundation
- Powell Gene Therapy Center at the University of Florida
- Prader-Willi California Foundation
- Prader-Willi Syndrome Association
- Preferred Public Relations
- PRISMS (Parents and Researchers Interested in Smith-Magenis Syndrome)
- Progeria Research Foundation
- Program for Neurodevelopmental Function in Rare Disorders (NFRD), University of North Carolina
- Progression BioSciences
- Prosensa
- Prostate Cancer International
- Proyecto Pide un Deseo Mexico
- PRS-Different Faces
- PSC Partners Seeking A Cure (Primary Sclerosing Cholangitis)
- PTC Therapeutics
- Pull-thru Network
- Pulmonary Fibrosis Advocates
- Pulmonary Fibrosis Foundation
- Pulmonary Hypertension Association
- Purdue Pharma
- QLT Inc.
- Questcor Pharmaceuticals
- Rahais Technologies Pvt. Ltd.
- Raptor Pharmaceuticals
- Rare Disease Foundation of Iran
- Rare Disease in China Newsletter
- Rare Disease Therapeutics
- Rare Genomics Institute
- RARE Project
- Rare Tumors
- RareShare
- Ray Vanco Childrens Foundation
- Raynaud’s Association, Inc.
- Raynaud’s Association, Inc.
- Reaching Beyond the Clouds
- Realogy Cares
- Rebirth of Praise
- Recurrent Respiratory Papillomatosis Foundation
- Red De Amor
- Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
- Regeneron Pharmaceuticals, inc.
- ReGenX BioSciences
- RemedyMD Registry Software
- Remi Savioz Glut1 Foundation
- Research Match
- Resources of Hope
- Respiratory Decade
- Reynolda Counseling Services
- RHIZOKIDS
- Rhode Island Rare Disease Foundation
- RLUC Inc
- ROHHAD Fight Inc.
- Rose F. Kennedy Center, Albert Einstein College of Medicine
- RSDLaughter.com
- Rubinstein-Taybi Family Research Organization
- Rudd’s Air Service
- Russell-Silversupport.org
- Sanford Children’s Health Research
- Sanford Research
- Sanford-Burnham Medical Research Institute
- Santhera Pharmaceuticals
- Sarcoidosis Networking Association
- Sarcoidosis Support Australia
- Sarcoma Foundation of America
- SCID, Angels for Life Foundation
- Scleroderma Foundation, Greater Chicago Chapter
- Scleroderma Foundation, Inc.
- Scleroderma Research Foundation
- Scleroderma Society of the Philippines
- Seaside Therapeutics, Inc.
- Seattle Dizziness & Balance Disorders Group
- Selexis SA
- Share & Care Cockayne Syndrome Network
- Sheri4MS
- Shifa College of Medicine
- Shire Pharmaceuticals
- Short Bowel Syndrome Foundation, Inc.
- Shwachman Diamond Syndrome Foundation
- Sickle Cell Cure Foundation
- Sigma Tau Pharmaceuticals, Inc.
- Simpson Health Care Executives
- SMA Foundation
- SNAPPIN’ MINISTRIES (Special Needs Parents Network)
- Sociedad Mexicana De Errores Innatos Del Metabolismo Y Tamiz
- Society for Glycobiology
- Soligenix, Inc.
- Sotos Syndrome Support Association
- Southern Clay Products
- Spastic Paraplegia Foundation
- Spinal Cord Tumor Association
- ST/Dystonia Association
- Standish Foundation for Children
- Stanford University Medical Center ALS Clinic
- Starbucks Chicopee
- STARS US
- Stevens Johnson Syndrome Foundation
- Stiff Person Syndrome Association
- Stiffman Syndrome Blog (Debbie Richardson)
- Sturge-Weber Foundation
- Sydney (Australia) Children’s Hospital: Dr. Michael Brydon
- Synageva BioPharma Corp.
- Synageva Biopharma
- Syncope Trust & Reflex Anoxic Seizures-STARS
- Syndromes Without A Name USA
- Synowledge
- Syringomyelia Foundation
- Taiwan Foundation for Rare Disorders
- Talecris Biotherapeutics, Inc.
- Tarlov Cyst Disease Foundation
- Technology for Memory and Organization
- Terrapinn
- The Afternoon Nap Society
- The Alliance Against Alveolar Soft Part Sarcoma
- The ALS Association-Greater Philadelphia Chapter
- The American Spine and Chronic Pain Association
- The Anson Group LLC
- The Cavan Tommy Hoey Trust Ireland
- The Cholangiocarcinoma Foundation
- The Colleen Giblin Foundation
- The Desmoid Tumor Research Foundation
- The FPIES Foundation
- The Guthy-Jackson Charitable Foundation
- The Kathy Shih Memorial Foundation (for MSA)
- The M-CM Network (Macrocephaly-capillary malformation)
- The M.O.R.G.A.N. Project
- The Manton Center for Orphan Disease Research
- The Mastocytosis Society
- The Morrison Center
- The Ms Ability Network
- The Myelodysplastic Syndromes (MDS) Foundation, Inc.
- The National CML Society
- The NephCure Foundation
- The NOMID Alliance
- The Oley Foundation
- The Pulmonary Fibrosis Foundation
- The Relief Foundation
- The Sudden Arrhythmia Death Syndromes (SADS) Foundation
- The Sudden Unexplained Death In Childhood Program
- The Wales Fund
- The Wynne Foundation Inc.
- Therakos, Inc.
- Thomas Jefferson High School
- ThyCa: Thyroid Cancer Survivors’ Association, Inc.
- Timmons Organization for Sarcoidosis Support
- TN DCS
- TNA, The Facial Pain Association
- Tourette Syndrome Association
- Trimethylaminuria Foundation
- Trisomy 18 Foundation
- UC Irvine
- Ultragenyx Pharmaceutical Inc.
- UNC Chapel Hill School of Nursing
- United Leukodystrophy Foundation
- United Mitochondrial Disease Foundation
- United Pompe Foundation
- United States Adult Cystic Fibrosis Association
- United Therapeutics Corporation
- University of California, San Francisco Interstitial Lung Disease Program.
- University of Connecticut Premedical Society
- University of Florida, Powell GeneTherapy Center
- University of Wisconsin Health Occupations Students of America
- Unlock the Cure for Ewing’s Sarcoma
- Uplifting Athletes
- Upsher-Smith
- UrbanELITE Magazine
- US Hereditary Angioedema Association
- UT GSM Preston Medical Library
- Vasculitis Foundation
- VCFS 22q11 Foundation Australia
- Vestibular Disorders Association (VEDA)
- Vestibular Disorders Association, USA
- VHL Family Alliance
- ViroPharma Inc.
- Vision of Children Foundation
- Walk a Mile in My Shoes Campaign, EB Awareness
- Watson Laboratories
- WE MOVE
- Wellspring Community Church
- Werathah Web Site for Genetics Education: Saudi Arabia
- WI Bleeding Disorders Network
- Wilhelm Foundation
- Williams Syndrome Association
- Wilson Disease Association
- Wisconsin Bleeding Disorders Network, Inc.
- Wisconsin Chronic Fatigue Syndrome Association
- Wobbly Feet Foundation, Inc.
- Woodland Healthcare
- Woody’s Mom, Inc.
- XLH Network
- Zacharon Pharmaceuticals, Inc.
- ZioPharm Oncolocy, Inc.