Countdown to Rare Disease Day

Alone we are Rare. Together we are Strong.

Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

Become a Partner

Your patient organization, government entity, medical or other professional society, or company can support Rare Disease Day by becoming a Partner. This means that you:

  • Support the theme of the day (that rare diseases are an important public health issue)
  • Agree to promote the day through whatever means you have, such as posting the logo on your website or in your publications
  • Agree to observe the day in the non-commercial spirit in which it was intended
  • Join us in celebrating the unique partnership between rare disease patients and researchers, and the need for more research to develop safe, effective new treatments

You’ll receive helpful tools

As a Rare Disease Day partner, your organization or company will receive helpful tools created by NORD such as a press kit, stories and photos to share with your members or employees, and regular email blasts to let you know what other partners are doing.

To become a Rare Disease Day Partner, fill out and submit this form.