Press Kit and Resources

Looking for ways to raise awareness for Rare Disease Day? Below are a number of resources, including sample press releases, letters-to-the-editor, and governor’s letters and state proclamations that you can download and customize in less than 5 minutes. Here you will also find the official Rare Disease Day logo, social media downloads, infographics, printable handouts for your events, a countdown clock to add to your website, videos, and more. Feel free to use and share with others.

By telling your story and sharing your experiences, you help others understand what it is like to live with a rare disease. You play an important role in this global awareness campaign. Reach out to your local media reporters, including TV, radio, newspapers, online reporters and bloggers, and give them information about Rare Disease Day and your particular story.

And don’t forget to submit your photos to this year’s Rare Disease Day Handprints Across America photo gallery!

Press Kit: