Press Kit and Resources

NORD is offering a press kit with resources to help you reach out to your local media or share your story online. Sharing experiences helps people understand what it is like to live with a rare disease. You can play an important role in this global awareness campaign by contacting TV, radio, newspaper or online reporters or bloggers with information about Rare Disease Day and your particular story. Please feel free to use these resources and to share them with others. The types of resources you will find on this page include:

Rare Disease Day Press Kit:

Rare Disease Day International Countdown:

To add this to your blog or website, copy and paste the following code:

Rare Disease Day Downloads:

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Proclamation Resources:

Rare Disease Day US Countdown Badge:

To add this to your blog or website, copy and paste the following code:

Rare Disease Day US Videos: