Press Kit and Resources

Each year NORD offers a press kit with resources to help you reach out to your local media or share your story online. Sharing experiences helps people understand what it is like to live with a rare disease. You can play an important role in this global awareness campaign by contacting TV, radio, newspaper or online reporters or bloggers with information about Rare Disease Day and your particular story. Please feel free to use these resources and to share them with others.

NORD will update many of these resources for the 2015 Rare Disease Day campaign, but the 2014 information and tools can still be used to raise awareness throughout the year. The resources you will find on this page include:

Media Stories and Blogs from Rare Disease Day 2014:

Rare Disease Day Press Kit:

Rare Disease Day Downloads:

info-short

Proclamation Resources:

Rare Disease Day US Countdown Badge:

To add this to your blog or website, copy and paste the following code:

Rare Disease Day International Countdown:

To add this to your blog or website, copy and paste the following code:

Rare Disease Day US Videos: