In School Activities

Hosting a Rare Disease Day event in your local school is a great way to commemorate the day and raise awareness in your community. Below are some suggestions for all school-age students.

High School Curriculum Project

A curriculum supplement on rare diseases for high school biology classes has been developed by a genetic counseling master’s degree student in collaboration with NORD. This curriculum contains background information for teachers and creative, flexible classroom activities to promote active learning. The activities focus on advancing scientific understanding of rare disorders; promoting compassion, empathy and respect for people with different abilities; developing critical thinking skills; and preparing students to make informed decisions as citizens. Read the Rare Disease Curriculum Introduction.

If you would like to access the full curriculum, please fill out this form and it will be emailed to you.

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Middle School Rare Disease Curriculum

The National Institutes of Health (NIH) has created a curriculum supplement for Rare Diseases and Scientific Inquiry targeted at grades 6-8. According to the NIH website, students explore how scientists use inquiry to research rare diseases and treatments and to further understand the workings of the human body. The supplement contains two weeks of lessons that are easily integrated into the curriculum and are aligned to national and state standards. You can learn more from NIH’s website.

Other In-School Activity Ideas:

  • Have an assembly about Rare Disease Day. Ask NORD if there is an organization in your area that might be able to provide a speaker.
  • Provide each student with an index card with the name of a rare disease. Have the student research the disease and write a brief description on it on the card. Display all the cards in a central location such as the school library.
  • Ask students if they know anyone living with a rare disease and, if so, to write a paragraph about how the rare disease affects that person’s life. Make a scrapbook with all the stories.
  • Download the Rare Disease Day “hand” logo from NORD’s website. Have young children color it and explain that this symbol is being used all around the world for Rare Disease Day.
  • Invite a local pediatrician or other physician, or a nurse, with knowledge of rare diseases to speak.
  • During daily announcements, say a quote or short statement to remind the students of Rare Disease Day
  • Post information on bulletin boards
  • Have a Student Information Table at lunch
  • Hand out beads in a school assembly, and give 1 of every 10 students a bead of a different color to represent the 1 in 10 Americans with rare diseases