Thank you for submitting your messages on Rare Disease Day! Handprints on the Hill is a 24-hour campaign on Rare Disease Day. Just after midnight on Rare Disease Day morning, we post a letter on our website that can be customized and sent directly to your representatives!
On-Going Policy Initiatives
Informed legislators make better decisions. Read about NORD’s ongoing policy initiatives and current ways to Take Action on policy issues related to rare diseases here.
You can use the following tools to find the name and contact information for your representatives:
NORD is also inviting advocates to raise awareness of public policy issues at the state level. Learn about events planned in your state and how you can participate. Learn more >