There are nearly 30 million Americans living with rare diseases. Please help us show the impact of Rare Disease Day across the nation and tell your story. We invite you to print out this flier with the Rare Disease Day logo and take a picture of yourself, or ask someone else to photograph you, holding it up anywhere in the U.S. If you would prefer, you can purchase and wear a Rare Disease Day T-shirt instead.
This year, we are asking individuals to also tell their story in 200 words or less. Sharing experiences helps people understand what it is like to live with a rare disease. Starting in December, we will feature a new story on the Rare Disease Day US homepage every week.
We will post the photos and stories in our “Handprints Across America Gallery.” View what has already been submitted.
Please submit your entry here: