Rare Disease Day is about recognizing the shared goals and common interests among all people affected by rare diseases. By working together, we can raise awareness and create a global impact. Individuals can sign up as Ambassadors. Leaders of organizations or representatives of companies can sign up as Partners. Show your support by becoming a Partner or Ambassador.
View the current list of Partners or view the current list of Ambassadors.
Rare Disease Day Partners:
Rare Disease Day Partners are patient organizations, government agencies, medical or other professional societies, or companies. These organizations:
- Support the theme of the day — that rare diseases are an important public health issue
- Agree to promote the day through whatever means they have, such as posting the logo on their website or in their publications
- Agree to observe the day in the non-commercial spirit in which it was intended
- Join us in celebrating the unique partnership between rare disease patients and researchers, and highlighting the need for more research to develop safe, effective new treatments
Benefits:
As a Rare Disease Day Partner, your organization or company will receive helpful tools created by NORD such as a press kit, stories and photos to share with your members or employees, and regular email blasts to let you know what other Partners are doing. We encourage both Partners and Ambassadors to share why they have joined and to find creative ways to support the spirit of the day.
Rare Disease Day Ambassador:
If you are an individual without an organization, we invite you to be a Rare Disease Day Ambassador. You will receive email blasts with updates about the day. If you sign up to be an Ambassador, you:
- Support the theme of the day (that rare diseases are an important public health issue)
- Agree to promote the day through whatever means you have, such as posting the logo or status updates on your Facebook, Twitter, Blog, or sending emails to your family and friends, etc.
- Spread awareness and see what a powerful force we can become when we work together
To become an Ambassador, use this form. Use the optional “Reason” field to briefly tell us why you’re interested; this information along with your first name may be shared on Facebook.