Rare Disease Day is about recognizing the shared goals and common interests among all people affected by rare diseases. By working together, we can raise awareness and create a global impact. Individuals can sign up to receive updates about Rare Disease Day. Leaders of organizations or representatives of companies can sign up as Partners. Show your support by becoming a Partner or Individual Supporter to receive our updates today.
View the current list of Partners.
Rare Disease Day Partners:
Rare Disease Day Partners are patient organizations, government agencies, medical or other professional societies, or companies. These organizations:
- Support the theme of the day — that rare diseases are an important public health issue
- Agree to promote the day through whatever means they have, such as posting the logo on their website or in their publications
- Agree to observe the day in the non-commercial spirit in which it was intended
- Join us in celebrating the unique partnership between rare disease patients and researchers, and highlighting the need for more research to develop safe, effective new treatments
As a Rare Disease Day Partner, your organization or company will receive helpful tools created by NORD such as a press kit, stories and photos to share with your members or employees, and regular email blasts to let you know what other partners are doing.
If you are an individual without an organization, we invite you to learn all of the ways you can help support Rare Disease Day. By signing-up to receive updates, you will receive email blasts with updates about the day, including ways you can help raise awareness with your family and friends.
Use the optional “Reason” field to briefly tell us why you’re interested; this information along with your first name may be shared on Facebook.