On Feb 16, ECD Global Alliance told us that Governor Mike Rounds has signed the 2010 proclamation declaring South Dakota’s observation of Rare Disease Day and thanked Gail Hobson for getting it done. We’d also like to thank Cindy Wren Gray of the CDG Family Network and Monarch Rare Diseases Cooperative for her help in getting this proclamation.
CDG Family Network Coffee/Mixer
On Feb 28, CDG Family Network and Monarch Rare Diseases Cooperative will be hosting a coffee/mixer in Sioux Falls, SD at Kaladis Coffee Legend and Bistro for everyone interested in rare diseases.
