Thanks to the efforts of PKS Kids and Amyloidosis Foundation, Governor Jennifer Granholm has proclaimed Feb. 28 Rare Disease Day in Michigan!
Rare Disease Day Open House in Michigan
The 2nd Annual Open House celebrating Rare Disease Day is set for Feb. 27 and jointly sponsored by MOPIXTV and Grand Traverse Area Library for Blind and Physically Handicapped. Open to all. Music. Refreshments. Michigan authors. Location: 813 Napolean Way, Traverse City, MI. Information: Sharon@mopixtc.com.
Michigan State Medical Students to Launch Survey
Just before Rare Disease Day, four medical students at Michigan State University Medical School will launch a survey to provide updated information on perceptions of rare disease patients and families. Watch for additional information soon.
