Countdown to Rare Disease Day

Alone we are Rare. Together we are Strong.

Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

Louisiana

On Jan 19, the ECD Global Alliance told us that Governor Bobby Jindal has signed the proclamation declaring Louisiana’s Feb. 28 observation of Rare Disease Day!

Students Take on Rare Disease, One Jean Ribbon at a Time

More than 100 4-Hers will listen to Dr. Joy Sturtevant of Louisiana State University Health Sciences Center discuss biology, genes and genetics. (Dr. Sturtevant participated in 4-H as a child in New York.) The 4-Hers will make jean ribbons to wear and share for World Rare Disease Day. Information: hellocalhouns@bellsouth.net.

Back to the map.