Countdown to Rare Disease Day

Alone we are Rare. Together we are Strong.

Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

California

BioMarin

BioMarin Pharmaceutical Inc. will be sponsoring its 2nd Annual Rare Disease Day Celebration on Thursday, Feb. 25 in Novato, CA. The special events planned include the grand opening of the company’s new state-of-the-art manufacturing facility and a reception honoring patients living with rare diseases. A NORD representative will participate.

Burnham Institute

The Sanford-Burnham Medical Research Institute in San Diego will host the 1st Annual Sanford-Burnham Symposium on Rare Diseases: Collaborations that Drive Discovery, Therapy and Advocacy from 8:30 a.m. to 6:30 p.m. on Friday, Feb. 26. Details.

Cushing Support and Research Foundation

The Cushing’s Support and Research Foundation is hosting its 2nd Annual Cushing Patient Awareness and Education Day on Saturday, Feb. 27, at the Marriott San Mateo in San Francisco. Several medical experts will speak. Details.

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