Rare Disease Day US » Write Your Governor http://rarediseaseday.us Join NORD in creating awareness for Rare Disease Day. Pledge your support for the 30 million Americans affected by rare diseases. Mon, 10 May 2010 18:58:48 +0000 http://wordpress.org/?v=2.8.6 en hourly 1 Write Your Governor http://rarediseaseday.us/take-action/write-your-governor/write-your-governor/ http://rarediseaseday.us/take-action/write-your-governor/write-your-governor/#comments Thu, 05 Nov 2009 23:54:01 +0000 dsenseney http://rdd.dev.corp.sireninteractive.com/?p=78 Illinois ProclamationProclamations supporting Rare Disease Day were issued in 39 states in 2009. Requests for such proclamations must be made by someone (anyone!) living in the state. NORD is grateful to its Partners for all their hard work in getting these proclamations last year.

We’re starting to receive proclamations for 2010. The Amyloidosis Support Groups obtained a proclamation from Governor Pat Quinn of Illinois. See what your state is doing to support Rare Disease Day 2010.

Please feel free to use the following tools to contact your governor or state legislature.

Sample letter to governor

Sample proclamation

If you get a proclamation — let us know!

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