Countdown to Rare Disease Day

Alone we are Rare. Together we are Strong.

Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

Write Your Governor

Illinois ProclamationProclamations supporting Rare Disease Day were issued in 39 states in 2009. Requests for such proclamations must be made by someone (anyone!) living in the state. NORD is grateful to its Partners for all their hard work in getting these proclamations last year.

We’re starting to receive proclamations for 2010. The Amyloidosis Support Groups obtained a proclamation from Governor Pat Quinn of Illinois. See what your state is doing to support Rare Disease Day 2010.

Please feel free to use the following tools to contact your governor or state legislature.

Sample letter to governor

Sample proclamation

If you get a proclamation — let us know!