http://rarediseaseday.us Join NORD in creating awareness for Rare Disease Day. Pledge your support for the 30 million Americans affected by rare diseases. Mon, 10 May 2010 18:58:48 +0000 http://wordpress.org/?v=2.8.6 en hourly 1 http://rarediseaseday.us/take-action/tell-your-story/tell-your-story/ http://rarediseaseday.us/take-action/tell-your-story/tell-your-story/#comments Thu, 05 Nov 2009 23:54:16 +0000 dsenseney http://rdd.dev.corp.sireninteractive.com/?p=80 Reading about the experiences of real people helps others understand what it’s like to have a rare disease.  If you would like to share your story, send a few paragraphs or up to 500 words to NORD at rarediseaseday@rarediseases.org.  We can’t guarantee it will be published but we will share as many of these stories as possible on our own website or through other media.

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