The purpose of World Rare Disease Day is to harness the creative energy of the millions of people around the world with rare diseases — as well as that of all the people who care about and assist them — to help others understand certain fundamental issues that need to be addressed.

Rare Disease Day is a grassroots activity. This means you can help us achieve the goals of the day from wherever you happen to be. You don’t have to travel to Washington DC. You don’t have to have special skills or spend a lot of money. And you can start right now.

Make sure your state is supporting Rare Disease Day. You can Write Your Governor with three easy clicks. Not sure if your state is already a supporter? Find out by checking What’s Happening In Your State.

Become a Rare Disease Day Partner (for organizations, agencies, societies, and companies)