NORD will provide a press kit and other tools to help Rare Disease Day Partners raise awareness of specific rare diseases and the challenges faced by all patients and families. We appreciate your help and support in doing whatever you can — wherever you are — to help with this.

The press kit includes a sample letter to the editor intended for local and regional newspapers, sample press releases, a fact sheet on the Orphan Drug Act, Rare Disease Day Frequently asked questions, and details on the major themes that are the international focus this year for Rare Disease Day 2010. These focus topics are the importance of research and the partnership between patients and researchers.

These tools are not exclusive to the general awareness of Rare Disease Day, but are also easily tailored to include specific information on a particular disease or organization. Organizations or individuals are encouraged to use the press kit to inform your local communities about events occurring in your area or to publicize a state proclamation of Rare Disease Day.

Sign on as a Rare Disease Day Partner or if you are an individual interested in receiving the press kit please send us an email.