Handprints Across America Gallery

NORD Staff: Danbury, CT

Kimberly W. in Isle of Palms, SC.

Thomas in GA, is raising awareness for Klippel-Feil Syndrome.

Heather, raising awareness at a coffeehouse in KS for Hermansky-Pudlak Syndrome.

Tina in OK, has Stiff Person Syndrome a disease that is one in a million.

SD in Kirby Cove, just north of San Francisco, CA raising awareness for CAPS.

Shelby, Sandy, and Sherry in downtown Indianapolis at the Super Bowl XLVI Village Celebration

Carmen has Hermansky-Pudlak Syndrome and lives in Boston, Mass.

Gabriel is six years old and lives in OH.

Pfizer HQ raising awareness for Rare Disease Day!

4 month-old Brayden in OH has ABCA-3 surfactant deficiency.

Kelli and her sons with a proclamation from Kansas.

Shayne and her friends getting the word out about RDD and fibrous dysplasia.

Brittany in VA was diagnosed with NBIA in Feb. 2006. Keeping hope for a cure alive.

Lisa in FL, "I represent so many that are afflicted with Dystonia."

Suzanne and Grand Daughter Rylee in OH.

Kathy in OH, a survivor of an arteriovenous malformation of the brain.

Brigid in PA, raising awareness for Langerhans Cell Histiocytosis.

Rochelle in Guam- the Director of Cryoglobulinemia Vasculitis Org.

Sturge-Weber Foundation Office, NJ- Bonnie, Karen and Anne

2 year old Annalie is raising awareness for Ichthyosis in Alabama.

Lee, in MI raising awareness for Antiphospholipid Syndrome.

Skyler supports Chronic Granulomatous Disease(CGD) awareness with a smile.

Julie, from WI, concerned with Mal de Debarquement Syndrome (MdDS).

Amy, from Kuwait, supports her identical twin sister with Russell-Silver Syndrome.

Ctr. for Metabolic Bone Disease and Molecular Research in MO supports Rare Disease Day

Carisa, Dalton, Tadan, and Paige raise awareness about CACH-Vanishing White Matter Leukodystrophy in MI

"We Love Liam Day" is one way Liam, Luke, Barbara, and Derrick raise awareness.

Debbie, from IL, supports Idiopathic Thrombocytopenic Purpura awareness in a local school.

Tanya, from California, raises awareness about Aggressive Fibromatosis.

Jack lives in CA and raises awareness for Mastocytosis with a big smile.

Veta, from MI, raises awareness for Lambert-Eaton Myasthenic Syndrome.

Nate and his mom support Rare Disease Day!

Ellie, Thorne, Reggie, Jen, and Dylan support Mastocytosis in Washington, DC.

Dylan raises awareness about Mastocytosis in Washington, DC.

Amy in NY, raising awareness for Histiocytosis and other family members with rare diseases.

Seth and Lynn, Seth has CRPS, a rare disease of the nervous system.

Adrienne, in TX, is raising awareness on behalf of her dad who has CRPS.

Alex in VA, helping raise awareness for Eosinophilic Esophagitis

Tiffany, in NJ, was diagnosed with Pulmonary Arterial Hypertension in July 2011.

Cambridge BioMarketing observes RDD on the banks of the Charles River in Boston..

Ricky, in GA, is the founder of Racing for a Cause, a campaign under APFED

Abby in WA, raising awareness for Lymphangioma

Faith and Joseph, in PA, have the Rare Disease Ichthyosis

Lisa in Ponte Vedra Beach, FL bringing awareness to Fibromuscular Dysplasia for RDD

Macie in KY raises awareness about Glut1 Deficiency.

Constance focuses on the Evans Syndrome Community Network while viewing the State Capital building in Des Moines.

Trish in TX, raising awareness for Antiphospholipid Antibody Syndrome!

Leo in Chicago says, "My family suffers from a form of Mastocytosis and will do all I can to support Rare Diseases!"

Alessandra and her pup Leo in Chicago, supporting Mastocytosis & all Rare Diseases!

NasalCEASE in New York supports Rare Diseases such as HHT.

Pam in CA has Mal de Debarquement Syndrome.

Britt in WA is raising awareness for Retinitis Pigmentosa.

AVI BioPharma CEO and several of the employees at our Bothell, WA headquarters

Brooke and Gram raising awareness for Mastocytosis in NJ!

Sami Jo and David in IA raising awareness of Multiple Hereditary Exostosis

Cassandra Rose in CA, 10 month old diagnosed with NOMID

Jessica in WV, raising awareness for CAPS (NOMID)

Jodie in TX raising awareness for Mal de Debarquement Syndrome.

Melissa and Shannon in CA raising awareness for Behcets Sydrome

Sally & her quilting friends in SC representing Pulmonary Arterial Hypertension

Mary & Hank at New Door LLC Studio Chicago

Zoe, Aiden, Mia & Chloe in Chicago raising HOPE for a cure for Mastocytosis!

Genevieve, Amy & Christopher in Chicago raising HOPE for a cure for Mastocytosis!

Vivian, Kathryn & Tevor in Chicago raising HOPE for a cure for Mastocytosis!

Mike, Adina & Lisa in Chicago raising HOPE for a cure for Mastocytosis!

E.G. & Scott in Chicago raising HOPE for a cure for Mastocytosis!

Renee & Zak in Chicago raising HOPE for a cure for Mastocytosis!

Leeanne in honor of Mastocytosis in Minnesota

Samantha in St. Louis

Marianne raising awareness for Cryoglobulinemia Vasculitis.

Renee, Ashley & Jaala in Chicago supporting Mastocytosis & Rare Disease Day!

Joy in GA raising awareness for Pulmonary Arterial Hypertension.

The Darlington House in DC supports RDD & Mastocytosis

Remberto in DC Supports Mastocytosis & RDD!

Empatrice in DC supports Mastocytosis & Rare Disease Day!

Doris & Elisa in DC support Mastocytosis & Rare Disease Day

Marlon in DC suports Mastocytosis & Rare Disease Day!

Francesco in DC suports Mastocytosis & RDD!!!

Francesco & Fabio in DC support Mastocytosis!

Kelly in Oregon raising her hand for a cure for Mastocytosis!

Carter in CA Fighting Through the FPIES Maze

Aaron in NY, has been diagnosed with Morquio.

Mary and her boys in Utah, diagnosed with Eosinophilic Disease

Granddad Kevin and Granddaughter Jennifer Raising Awareness for Huntington's Disease in FL

5th Grade Youth Power Club at Lincoln Elementary School in NJ

Sam has FPIES, Food Protein Induced Enterocolitis Syndrome

Cary, Hoping for more treatment or a cure for Systemic Mastocytosis.

Jennifer created this image using photo editing software to raise awareness for Huntington's and all RD

Richard and one of his baby goats getting the word out about Charcot Marie Tooth disease.

Levi has a rare disease called, Sanfilippo Syndrome (MPS IIIC).

Attendees at our Rare Diseases Coming Together Beach Bonfire in San Francisco

Ken in TX was born with anhydrotic ectodermal dysplasia.

Joanna in Oregon raising awareness for IH

Laura (SCAD survivor) with picture of Uncle Ron (amyloidosis) in NC

Lyndsey in Michigan raising awareness for Indolent Systemic Mastocytosis.

Lloyd, Cody, and Henry are three brothers living in ME with Pelizaeus-Merzbacher disease.

Bethany in Buffalo, NY raising awareness of hypoparathyroidism!

Christine, from California, is Mastocytosis patient raising awareness for all rare diseases.

Lacey, diagnosed with IH in December 2011, observes RDD 2012 with friends

Haley in Ohio and is in treatment for Langerhans Cell Histiocytosis.

Lynn has Periodic Paralysis, a rare disorder which causes frequent episodes of weakness and paralysis which can affect her muscles, her heart, her digestive system and her breathing.

We support West Syndrome and 1P36 Deletion Syndrome. Braeden is rockin' Rare Disease Day with Phil!

Andrea in the Bronx raising awareness for Mastocytosis!

The University of Wisconsin- Madison Health Occupation Students of America show solidarity while wearing black and white to represent rare (aka zebra) diseases.

Heather & Justine with the Best doc in the whole world!

Heather w/ great nurses at her local hospital

Supporting Mastocytosis & RDD!

Supporting Mastocytosis & RDD!

Supporting Mastocytosis & RDD!

Supporting Mastocytosis & RDD!

Supporting Mastocytosis & RDD!

Tracy is supporting Mastocytosis & RDD!

Will is supporting rare disease day!

Kristen Supports Mastocytosis & RDD!

Dana Supports Mastocytosis & RDD!

Estelle Supports Mastocytosis & RDD!

Val Supports Mastocytosis & RDD!

Pog Supports Mastocytosis & RDD!

Deej Supports Mastocytosis & RDD!

Hunter Supports Mastocytosis & RDD!

Katie Supports Mastocytosis & RDD!

Supports Mastocytosis & RDD!

Supports Mastocytosis & RDD!

Colleen, from New Jersey, supports GLUT1DS!

Sierra raises awareness with Castleman's disease

Rare Disease Awareness Group - Crosby High School

Lauren supports Idiopathic Immune Thrombocytopenia Purpura by wearing Purple!

Wesley and his Principal raising awareness for Mastocytosis at Eisenhower Elementary in Indiana

Lunch and Learn Rare Disease Day Program Attendees in New Jersey!

Jena raises awareness for Congenital Central Hypoventilation Syndrome!

Kim & Amber are supporting 1 year old Kaitlyn who has MeCP2 Duplication Syndrome

Henry is raising awareness for MPSIIIA

Makayla was born with self-healing skin, Langherhans Cell Histiocytosis

Raising awareness for mastocytosis and all other rare diseases.

At work or in the community we (Aviva Children's Services) Raise Our Hands to raise awareness of Epidermolysis Bullosa (EB)

Spreading awareness for Septo-Optic Dysplasia and panhypopituitarism! Fox is 5 and loves to sing and dance.

Jason, Maryann, and John - 3 generations of survivors of rare diseases.

Carcinoid Cancer Champion Cyndi!

Nana, Pops, and Maximus supporting RDD!

TC Raising Awareness for Mastocytosis from Mount Shasta, California.

Maximus was diagnosed with MMA mut at birth. Max is from Sulphur, Louisiana.

Jason & Gio raising awareness for Mastocytosis.

Showing support for Septo-Optic Dysplasia and panhypopituitarism!

Cindy and her two children support RDD!

Gianna supports RDD for her dad who has Mastocytosis.

New Orleans Harley Owner's group is raising awareness for Epidermolysis Bullosa

Manufacturing Technicians at Shire’s Alewife, MA Location

Shire Clinical Operations

John dreams of a cure for all rare diseases!

The staff at Centennial Elementary in OK, participating in honor of their student Kennidee who has Sturge-Weber Syndrome

Staff at Pioneer Distributing Company in Litle Rock, AR shared Kennidee's story about living with Sturge-Weber Syndrome

The staff at Oswalt Restaurant Supply participated in honor of Kennidee who has Sturge Weber Syndrome

Todd at his home.

Zoe and Vivian at New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

Rose, Olivia, and their friend in Chicago raising HOPE for a cure for Mastocytosis!

At New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

At New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

At New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

At New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

At New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

At New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

At New Door LLC Studio Chicago raising HOPE for a cure for Mastocytosis!

Mary and Ashley in Chicago raising HOPE for a cure for Mastocytosis!

Delanie raising awareness for mastocytosis in Mount Shasta, California!

NORD staff and member organization representatives at a NY Meeting

Brittany, in IL, raising awareness for Chronic Intestinal Pseudo Obstruction

Gretchan, is raising awareness for CMT disease at her beautiful antique piano in CA.