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Social Media

You can become involved with Rare Disease Day by participating in conversations and campaigns on social media. We’ll keep you posted here with campaigns to take part in on social media and messages that you can send out from your account to help us make a big impact. Remember to always use #RareDiseaseDay in your posts!

Current Campaigns

Social Media

Rare Disease Day supporters are encouraged to share the following tweets or Facebook posts on their personal accounts. By sharing messages like these on social media, you will help in getting Rare Disease Day to trend on the internet, bringing more awareness to the community. Help make an even bigger impact by using #RareDiseaseDay in all of your messages.


Tweets to Share:

I support #rarediseaseday in the United States! Do you? Retweet to show your support for the #1in10 Americans living w/ a #raredisease

I’m attending a #RareDiseaseDay Advocacy Event in [your state’s abbreviation]. You can too! Sign up here: http://ow.ly/X4Ncy

In the U.S., we all know someone w/ a #raredisease (#1in10people)-show your support on #RareDiseaseDay:  http://ow.ly/X4Ngc

#RareDiseaseDay on Feb. 28 is an important day to raise awareness for the 30 mill Americans w/ a #raredisease: http://ow.ly/X4Ngc

I just shared my #HandprintsAcrossAmerica photo to support #RareDiseaseDay! Check it out here & learn how to share yours: http://ow.ly/X4NrC

Take part in the #RareDiseaseDay Raise Your Hand Campaign to donate to #raredisease research. Click here to trigger a $1 donation: http://ow.ly/DIwQ308zR85

#RareDisease Research has improved in recent years in the U.S., but the need for progress remains. #RareDiseaseDay

FACT: Only 5% of the 7K #rarediseases have a @US_FDA approved treatment. We need more research. #RareDiseaseDay

Get involved with #RareDiseaseDay by joining @RareDiseases 7K Mile Movement where you can work together with Bikers, walkers, & runners to collectively move 7K total miles in representation of the 7K #rarediseases!

Facebook & Instagram Posts to Share:

Joining the National Organization for Rare Disorders (NORD) for #RareDiseaseDay to focus attention on the needs of patients and families affected by rare diseases. Visit the national website to learn more about how you can get involved: http://www.rarediseaseday.us/

Feb. 28 is #RareDiseaseDay! It is a time to highlight the needs of the 1 in 10 Americans who have rare diseases. Get involved and show your support for the day by visiting the national website: http://www.rarediseaseday.us/

I get involved with #RareDiseaseDay for ___________! Show your support for the 1 in 10 Americans who have rare diseases. Get involved and show your support for the day by visiting the national website: http://www.rarediseaseday.us/

The following are social media accounts devoted to Rare Disease Day. Follow these accounts for the most up-to-date information about the day and for resources, tips, and events to get involved with. We encourage you to tag these accounts too so that your posts can be shared with a larger audience-raising more awareness!

Rare Disease Day US 

Rare Disease Day Official 

NORD

Hashtags, short links preceded by the pound sign (#), are an integral way to how we communicate online. For Rare Disease Day, the community has been using the following hashtags. Using these hashtags during Rare Disease Day is important to create a large conversation about our community and to raise awareness for those who do not know about rare diseases.

  • #RareDiseaseDay
  • #RareDisease
  • #RareDiseases
  • #1in10
  • #CuresNow
  • #NORD