Days To Go




Press and Resources

Each year NORD offers a press kit and resources to help you reach out to your local media or share your story online. Sharing experiences helps people understand what it is like to live with a rare disease. You can play an important role in this global awareness campaign by contacting TV, radio, newspaper or online reporters, or bloggers with information about Rare Disease Day and your particular story. Please feel free to use these resources and to share them with others.


2017 EURORDIS Rare Disease Day Information Pack

Logos and Style Guide:

If you need a different version of the logo, please visit the global website or email us.

Frequently Asked Questions:

Fact Sheets and Event Handouts:

Email Signature:

Social Media Photos

Official Social Media Banner and Profile Picture

Informational Presentation

  • Download and share this presentation for further information about Rare Disease Day 2017

Coloring Pages

Additional Activities

Rare Disease Day Videos