Days To Go




Downloadable Materials

Each year NORD offers a press kit and resources to help you reach out to your local media or share your story online. Sharing experiences helps people understand what it is like to live with a rare disease. You can play an important role in this global awareness campaign by contacting TV, radio, newspaper or online reporters, or bloggers with information about Rare Disease Day and your particular story. Please feel free to use these resources and to share them with others.


Logos and Style Guide:

If you need a different version of the logo, please visit the global website or email us.

Frequently Asked Questions:

Fact Sheets and Event Handouts:

Email Signature:

Social Media Photos

Information Pack

  • Download the global booklet – a one stop shop for everything you need to know about the international campaign

2018 Official Poster

Intellectual Property Rights

The Rare Disease Day logo is a registered trademark, owned by the European Organisation for Rare Disorders (EURORDIS). It may not be used for commercial purposes. It may only be used in support of activities related to Rare Disease Day and can only be displayed in the spirit in which it was intended – a symbol of global partnership in the search for ways of improving the lives of those affected by rare diseases. The logo, if used, should be stand alone, in the format available on the global website. You may not change the design, color or proportions of the logo, or crop or combine it within any other logo. Non-compliant use of the logo will constitute a material breach of EURORDIS’ trademark rights. NORD, as an official U.S. sponsor is delegated with the task of ensuring proper use of the logo and mention of the campaign.

Reproduction of the materials included on this site, whether in paper or electronic media or other forms, is only authorized for personal and non-commercial use and in support of activities related to Rare Disease Day, including but not limited to, fundraising activities for a personal event and/or organization. Click here for more information.

Coloring Pages

Additional Activities

Rare Disease Day Videos