Each year NORD offers a press kit and resources to help you reach out to your local media or share your story online. Sharing experiences helps people understand what it is like to live with a rare disease. You can play an important role in this global awareness campaign by contacting TV, radio, newspaper or online reporters, or bloggers with information about Rare Disease Day and your particular story. Please feel free to use these resources and to share them with others.
Press and Resources
Logos and Style Guide:
Frequently Asked Questions:
Fact Sheets and Event Handouts:
- Download and share this presentation for further information about Rare Disease Day 2017
- Download and print this coloring sheet for a fun activity with kids