Days To Go




Host An Event

One of the best ways to get involved in Rare Disease Day is to host an event in your community. The more events that are planned, the more awareness we can raise. Host an event in your town, school, or company to raise awareness for rare diseases on and around Rare Disease Day!

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Event Hosting Tips

Once your event is planned, make sure to let people know about it! Share the impact that you made in your local community with the global community by:

  • Submit it to our website so that we can share the impact of the day across the United States
  • Sharing photos from the event on social media using #RareDiseaseDay
  • Send us your photos to feature on this website and future marketing materials for Rare Disease Day. Pictures can be sent to