Hemophilia Federation of America

The HFA hosted an Open House in Washington DC on February 25. All were welcome to attend. Stories were shared from the bleeding disorder community. Contact m.pascucci@hemophiliafed.org for more information.

Polka Dot Day

On February 19, the Mastokids.org encouraged people to show support of Rare Disease Day and pediatric mastocytosis by wearing Polka Dots, Awareness Ribbons, and other Mastokids apparel. They are now putting together a photo collage of all participants to show support of RDD. Send photos to awareness@mastokids.org.

A Pageant Ready Day

February 28th in Ann Arbor Michigan Stephanie Hunt (Mrs. Washtenaw County America 2010 and Mrs. United States 2007) hosted a pageant preparation day to raise funds for rare disease research. The event included representatives from all aspects of the pageant world needed for a pageant win and an auction of donated items. Please contact stephanie@stephanie-hunt.com for more information.

Middle March

Lincoln Park’s National Honor Society has identified Rare Diseases as their main focus for their awareness and fund raising this year. Including selling t-shirts at an event on March 17 at the Middle March Celebration, for more information contact tinapoon08@gmail.com.