Across the U.S., members of patient advocacy groups are seeking to obtain proclamations supporting Rare Disease Day from their governors. If you obtain a proclamation or official letter from your state, please notify NORD immediately so that we can indicate this on our map.

If possible, please share news about the proclamation with any media contacts you may have in your state. (NORD will also try to notify reporters in your state, but it’s helpful if someone living in the state does so.) Feel free to provide any information from the press kit to reporters, and to include information about the specific disease or organization of interest to you. Mail the proclamation or letter to NORD so that we can display it with all the others at events during the year. (Be sure to include your name, and the organization you represent, when you send it to us.) Mail proclamations to: Information Services, NORD, PO Box 1968, 55 Kenosia Avenue, Danbury, CT 06813.