Rare Disease Day USA

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SHOW YOUR SUPPORT

BECOME AN RDD SUPPORTER

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admin — Mon, 24 Jan 2011 18:32:26 +0000

Grassroots Activities

It is never too early to start thinking about the next Rare Disease Day. View ideas:

Submit a photo of yourself for the Handprints Across America Gallery
Write your reps to teach them about rare diseases
Bring rare disease day into your school
Buy Rare Disease Day Merchandise
Become an ambassador or partner or view more suggestions!

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admin — Mon, 24 Jan 2011 18:29:27 +0000

Join Events

Read Highlights about the 2012 events!

In 2012 more than 50 events were submitted to the events page. These included medical symposium, concerts, films, and a broad range of community awareness events.

Let us know if you have any ideas for 2013 events.

View the official Rare Disease Day Video!

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admin — Wed, 19 Jan 2011 17:16:25 +0000

Tell Your Story

There is never a bad time to share your story!

Write a letter to the editor or send a press release to a local newspaper. Sharing experiences helps people understand what it is like to live with a rare disease.

This press kit will make it easy for you to share the general theme and messages of the day, as well as your own story.