Rare Disease Day USA

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SHOW YOUR SUPPORT

BECOME AN RDD SUPPORTER

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Grassroots Activities

This year we are looking at new ways people from across the US to get involved.
We encourage you to:

Submit a photo of yourself for the Handprints Across America Gallery
Write your reps to educate them about rare diseases
Bring rare disease day into your school
Become an ambassador or partner to receive updates on these activities and much more!

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Join Events

Share your events with NORD and find out what is happening in your area!

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Tell Your Story

Tell your story to your local media!

Write a letter to the editor or send a press release to a local newspaper. Sharing experiences helps people understand what it is like to live with a rare disease.

This press kit will make it easy for you to share the general theme and messages of the day, as well as your own story.