We would like to feature the events that are taking place across the country. This can include anything from a company lunch and learn, to an organization’s open house or a patient meeting focusing on the day. Rare Disease Day is a grassroots effort and we want to hear how you are participating. This is a day for every member of the rare disease community — patients, caregivers, and those seeking to develop new and better treatments — to join together on behalf of our common goals.
Use this form to tell us about events you are planning. We’ll share this information on our events page or through social media.