Days To Go




Tell Us What You’re Doing

NORD features events that are taking place across the United States. Rare Disease Day is a grassroots effort and we want to hear how you’re participating. This is a day for every member of the rare disease community — patients, caregivers, and those seeking to develop new and better treatments — to join together on behalf of our common goals.

To make your Rare Disease Day event a success, please follow these steps:

  1. Fill out the form below to share your event on this website. NORD will share it on the events page and through social media to help drive registration for your event.

*Please note that because NORD is the Official U.S. Sponsor of Rare Disease Day, only events within the U.S. will be accepted for posting on the site. Events being hosted outside of the Untied States can be shared on the global site here.*

Your Details

Event Name

The event name. Example: Birthday party


This is a recurring event.

Recurrences span from From to to

Events start from Event starts at to All day

This event repeats every day days week on weeks on month on the months on the year years


of each month

Each event spans day(s)

For a recurring event, a one day event will be created on each recurring date within this date range.


This event does not have a physical location.

Location Name: *
Create a location or start typing to search a previously created location.
Address:  *
City/Town:  *
Country:  *

Location not found


Event Image

No image uploaded for this event yet