NORD will be co-sponsoring a tweetchat on the topic of “Conquering Rare Diseases” with ABCNews’ Dr. Richard Besser, Chief of the ABC News Medical/Health Unit, on Tuesday, Feb. 25, at 1:00 pm EST.
ABC Health Tweetchat Conquering Rare Diseases
Tuesday, February 25th, 2014: 1:00-2:00 p.m. ET
Tweetchat Hashtag: #abcDRBchat
Tweetchat Moderator: @abcdrbchat
Dr. Richard Besser: @DrRichardBesser
Special Guest Rare Disease Medical Expert
We will be live tweeting with NORD Board member and medical advisor Marshall Summar, MD, Chief of the Division of Genetics and Metabolism at Children’s National Medical Center in Washington DC from our NORD Twitter handle @Rarediseases.
We will also be tweeting through @RareDayUS (a Twitter feed dedicated to Rare Disease Day US).
The ABC News tweetchat draws an audience of approximately 30 million people. Participating will provide us all with a valuable opportunity to share information and resources, and also highlight Rare Disease Day.)
Help Promote the TweetChat
If you plan to join the chat, we hope you’ll tell your members and colleagues about it and help raise awareness of it on Facebook, Twitter, LinkedIn, and in your newsletters, email blasts or any other communications channels you use.
How to Join the TweetChat
Join the tweetchat from your active Twitter account.
Sign into the tweetchat at 12:45 p.m. ET on Feb. 25 from the Twitter management tool that you prefer. Join at #abcDRBchat.
Once you are signed in, you are welcome to tweet comments, facts, images and videos as often as you like.
Be sure to use the hashtag #abcDRBchat in all your tweets. Doing so will make your tweets a part of the actual chat.
When responding to a question, include the letter “T” followed by the number of the question.
Example Question 1:
How many rare diseases are there?
Example Response 1:
T1: There are approximately 7,000 rare diseases #abcDRBchat.
We look forward to your involvement as we work together to bring widespread recognition of rare diseases as a public health challenge.