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NORD and ABC Tweet Chat

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In celebration of Rare Disease Day, NORD will co-sponsor a tweetchat on the topic of rare diseases with ABC News’ Dr. Richard Besser, Chief of the ABC News Medical/Health Unit, on Tuesday, February 17, at 1:00 p.m. ET.

NORD will be live tweeting with Dr. Besser from the NORD Twitter handle @Rarediseases and @RareDayUS (a Twitter feed dedicated to Rare Disease Day).

Marsha Lanes, MS, CGC, NORD’s Genetic Counselor & Medical Educator, will be providing various answers through both Twitter handles.

The tweetchat is an opportunity for patients, experts, the rare disease community and the public to come together, ask questions, get answers, and raise important awareness leading up to Rare Disease Day.

The ABC News #abcDRBchat weekly health tweetchat draws an audience of approximately 30 million people. Everyone is invited to participate including patients, caregivers, physicians, nurses, researchers, advocacy groups, legislators, hospitals, healthcare system, pharmaceutical companies, and the news media. Participating will provide everyone with a valuable opportunity to share information and resources about rare diseases, and also highlight Rare Disease Day 2015 (on February 28, 2015).

We invite you to join us on the tweetchat (from your Twitter handle). We look forward to having you participate as we work together to bring widespread recognition of rare diseases as a public health challenge.

Tweetchat Coordinates
Tuesday, February 17, 2015:  1:00-2:00 p.m. ET
Tweetchat Hashtag:  #abcDRBchat
Tweetchat Moderator: @abcdrbchat
Dr. Richard Besser: @DrRichardBesser
NORD: @Rarediseases and @RareDayUS

Help Promote the Tweetchat
We invite you to share this information through Facebook, Twitter, LinkedIn, newsletters, email blasts or any other communications channels you use.

How to Participate in the Tweetchat
Join the tweetchat from your active Twitter account.  Sign into the tweetchat at 12:45 p.m. ET on February 17 from the Twitter management tool that you prefer. Join at #abcDRBchat.  Once you are signed in, you are welcome to tweet comments, facts, images and videos as often as you like.

Be sure to use the hashtag #abcDRBchat in all your tweets. Doing so will make your tweets a part of the actual chat.

When responding to a question, include the letter “T” followed by the number of the question.
Example Question 1: How many rare diseases are there?
Example Response 1: T1: There are approximately 7,000 rare diseases #abcDRBchat.

Keep the Conversation Going

After the tweetchat, you can continue the conversation using this year’s Rare Disease Day hashtags: #RDD2015 and #RareDiseaseDay.  See you on Twitter!

We look forward to your involvement as we work together to bring widespread recognition of rare diseases as a public health challenge.