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Events

Click your state on the map above to view what is happening in your state for Rare Disease Day 2015.

Tell us about any events you plan on organizing through our event form.

Alabama

If you would like to help us organize an advocacy event in this state, sign-up here.

Alaska

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Arizona

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Arkansas

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California

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Colorado

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Connecticut

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Organization: UCONN School of Medicine, Disabilities Interest Group
Name: Sophia Walker
Email: sowalker@uchc.edu
Event Name: Rare Diseases Awareness Event 2015
Event Address: 263 Farmington Avenue, Farmington, CT 06269
Event Date: 2/25/2015
Description: The UCONN School of Medicine Disabilities Interest Group is hosting the Rare Diseases Awareness Event on the evening of February 25th at the University of Connecticut Health Center. Join us in celebrating individuals who have rare diseases and the many researchers and physicians who are fighting to find cures for these conditions. Listen to patients, doctors, and students share their experiences and learn about rare diseases! Admission is free and refreshments will be provided. Everyone is welcome! If you are interested in speaking, would like more information, or have any questions, please contact us!

 

Delaware

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District of Columbia

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Organization: Rare Disease Legislative Advocates.
Name: Andy Russell
Email: arussell@everylifefoundation.org
Event Name: Rare Disease Week on Capitol Hill
Event Address: First Street SE, Washington, DC 20515
Event Date: 2/23/2015 – 2/27/2015
Description: Join RDLA and more than 200 rare disease patient advocates for events in DC dedicated to empowering patients, families and friends to become legislative advocates. You will have the opportunity to meet with your Members of Congress, network with government leaders and learn best practices for successful advocacy. You must be registered, however there is NO cost to attend any of the events and there are travel scholarships available.

Monday, Feb 23 – Rare Disease Documentary Screening and cocktail reception
Tuesday, Feb 24 – Rare Disease Legislative Conference
Wednesday, Feb 25 – Rare Disease Lobby Day on Capitol Hill
Thursday, Feb 26 – Rare Artist Recption in Rayburn House Office Building
Friday, Feb 27 – Rare Disease Day @ NIH

Florida

If you would like to help us organize an advocacy event in this state, sign-up here.

Organization: Guardian Hands Foundation.
Name: Grace Loeb
Email: grace.loeb@gmail.com
Phone: 305-321-6961
Event Name: Walk Against Rare Diseases
Event Address: Westland Gardens Park, 13501 N.W. 107th Avenue, Hialeah Gardens, FL 33018
Event Date: 2/28/2015 (7:00 AM – 11:30 AM)
Description: Join us for the 2nd Annual Walk Against Rare Diseases. Walk to raise awareness and to make a difference in the life of those affected by rare diseases.

Georgia

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Hawaii

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Idaho

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Illinois

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Indiana

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Iowa

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Kansas

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Kentucky

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Louisiana

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Maine

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Maryland

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Massachusetts

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Michigan

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Minnesota

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Mississippi

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Missouri

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Montana

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Nebraska

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Nevada

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New Hampshire

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New Jersey

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Organization: Autoinflammatory Alliance.
Name: Carla Herbert
Email: planterofhope01@yahoo.com
Event Name: Crate Expectations
Event Address: 322 Somerset Street, Gloucester City, NJ 08030
Event Date: 2/9/2015
Description: The Autoinflammatory Alliance is pleased to announce a new program for children with autoinflammatory diseases. Crate Expectations is a care package program in which we support our community members by sending unique care packages that will contain items intended to uplift and encourage. Items will vary but may include activities/crafts, lip balms/chapstick, hats and gloves, and a few other feel good items. For more information, please use the contact form located here.

New Mexico

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New York

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North Carolina

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North Dakota

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Ohio

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Oklahoma

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Oregon

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Pennsylvania

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Rhode Island

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South Carolina

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South Dakota

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Tennessee

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Texas

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Organization: Ambassador, Rare Disease Day, CADASIL Together We Have Hope

Name: Barbra Sonnen-Hernandez

Email: fightgbs@gmail.com

Event Name: Rare Disease Day Texas Capitol Rally 2015

Event Address: 1100 Congress Avenue, Austin, TX 78701

Event Date: 2/28/2015

Event Description: Rare Disease Day Texas Rally 2015

Utah

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Vermont

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Virginia

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Washington

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West Virginia

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Wisconsin

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Wyoming

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