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Events

Click your state on the map above to view what occurred in your state in 2014.

Thank you to everyone who planned or participated in an event in 2014! It is never too early to start planing for 2015, tell us about any events you plan on organizing through our event form.  We will post these events when we launch the 2015 campaign.

Alabama

2014: An event was organized by the University of Alabama’s Genetics Department at the Children’s Harbor at the Children’s Hospital of Alabama.

If you would like to help us organize an advocacy event in this state, sign-up here.

Alaska

View the proclamation

2014: An individual ran the Alaskan Iditarod Sled Dog Race to raise awareness. Learn more

If you would like to help us organize an advocacy event in this state, sign-up here.

Arizona

If you would like to help us organize an advocacy event in this state, sign-up here.

Arkansas

If you would like to help us organize an advocacy event in this state, sign-up here.

California

Images from the California State House Event

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Other 2014 California Events:

  • The Center for Rare Disease Therapies at the Keck Graduate Institute, School of Applied Sciences hosted an event in Claremont. Learn More
  • The Sanford-Burnham Medical Research Institute hosted an event in San Diego. Learn More
  • Community awareness and educational events also occurred.

Colorado

View the proclamation

If you would like to help us organize an advocacy event in this state, sign-up here.

Connecticut

Images from the Connecticut State House Event

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Delaware

If you would like to help us organize an advocacy event in this state, sign-up here.

District of Columbia

2014: Many advocacy and community awareness events occurred, including a Rare Disease Congressional Caucus briefing.

Florida

2014: Community awareness events took place in Daytona Beach and Jacksonville.

If you would like to help us organize an advocacy event in this state, sign-up here.

Georgia

View the 2014 proclamation

From left to right: Representative Valerie Clark, District 101 Laurie Tracy Hagan Ritter, Adenoid Cystic Carcinoma patient Bill and Donna Cummins, Founder of Bellwether Patient Advocacy, Acquired von Willebrand's Disease patient (Donna) Governor Nathan Deal Shaye Saeurs, Medulloblastoma Brain Tumor and Bone Cancer patient Ralph Grosswald, M.P.H, Vice President of Operations, Celtaxsys, Inc., Eric Springman, Chief Scientific Officer of Celtaxsys, Inc. Paul Holmes, Husband of Representative Susan Holmes, District 129, Father of daughter with Leukemia

From left to right: Representative Valerie Clark; Laurie Tracy Hagan Ritter, Adenoid Cystic Carcinoma patient; Bill and Donna Cummins, Bellwether Patient Advocacy; Governor Nathan Deal; Shaye Saeurs, Medulloblastoma Brain Tumor and Bone Cancer patient; Ralph Grosswald, Celtaxsys, Inc.; Eric Springman, Celtaxsys, Inc.; Paul Holmes, Husband of Representative Susan Holmes, Father of daughter with Leukemia

2014: An educational awareness event took place in Atlanta.

Hawaii

If you would like to help us organize an advocacy event in this state, sign-up here.

Idaho

If you would like to help us organize an advocacy event in this state, sign-up here.

Illinois

View the 2014 proclamation

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Muriel Finkel from the Amyloidosis Support Groups Inc. with the Illinois proclamation.

2014: Community awareness events took place across Illinois.

If you would like to help us organize an advocacy event in this state, sign-up here.

Indiana

2014: The University of Notre Dame Center for Rare and Neglected Diseases hosted an event. Learn More

If you would like to help us organize an advocacy event in this state, sign-up here.

Iowa

View the proclamation

View Images from the Iowa State House Event

Iowa

2014: Additionally, a community fundraising event occurred in West Des Moines.

Kansas

Cambria with Kansas proclamation

Cambria with Kansas proclamation

If you would like to help us organize an advocacy event in this state, sign-up here.

Kentucky

View the proclamation

ky proclamation and rdd advocate

If you would like to help us organize an advocacy event in this state, sign-up here.

Louisiana

View the proclamation

Robin with the Louisiana proclamation

Robin with the Louisiana proclamation

If you would like to help us organize an advocacy event in this state, sign-up here.

Maine

If you would like to help us organize an advocacy event in this state, sign-up here.

Maryland

View the Proclamation

View the official Maryland General Assembly citation to NORD for Rare Disease Day

Images from the Maryland State House Event

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Rare Disease Advocate, Terri, holding the Maryland Rare Disease Day Proclamation

Rare Disease Advocate, Terri, holding the Maryland Rare Disease Day Proclamation

2014: The National Institutes of Health Hosted their annual Rare Disease Day Event at the NIH Clinical Center in Bethesda. Learn More

Massachusetts

2014: In addition to the State House Event, community awareness events took place across Massachusetts including in Boston, New Bedford, Cambridge and at Merrimack College. Students at Merrimack created this video.

Michigan

View the proclamation

If you would like to help us organize an advocacy event in this state, sign-up here.

Minnesota

Minnesota

2014: The University of Minnesota Stem Cell Institute and Center for Orphan Drug Research College of Pharmacy hosted a program on Improving the Care of Those Living with a Rare Disease: Opportunities in Education, Collaboration, and Public Policy. See Event Flier for More Details

If you would like to help us organize an advocacy event in this state, sign-up here.

Mississippi

If you would like to help us organize an advocacy event in this state, sign-up here.

Missouri

If you would like to help us organize an advocacy event in this state, sign-up here.

Montana

If you would like to help us organize an advocacy event in this state, sign-up here.

Nebraska

If you would like to help us organize an advocacy event in this state, sign-up here.

Nevada

View the proclamation

Young rare disease advocates proudly share the Nevada Rare Disease Day Proclamation.

Young rare disease advocates proudly share the Nevada Rare Disease Day Proclamation.

 

If you would like to help us organize an advocacy event in this state, sign-up here.

New Hampshire

If you would like to help us organize an advocacy event in this state, sign-up here.

New Jersey

View the proclamation

Images from the New Jersey State House Event

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2014: Community awareness events took place across New Jersey including Wayne, Montclair, West Orange and at Rutgers University.

New Mexico

If you would like to help us organize an advocacy event in this state, sign-up here.

New York

View the proclamation

One of our young advocates holds up the New York state proclamation from Gov. Cuomo.

One of our young advocates holds up the New York state proclamation from Gov. Cuomo.

2014: In addition to an event at the State House, community awareness and advocacy events took place across New York including in Sayville, Williamsville and Albany. Albany Medical Center and College also hosted their 2nd Annual Forum on Rare Diseases, the topic was Pediatric Rare and Complex Diseases Planning a Diagnostic and Care Management Process: A Community Discussion.

North Carolina

View the proclamation

2014: Candlelight vigils were held in Charlotte and Laurinburg. The University of North Carolina Greensboro hosted a Rare Disease Day Symposium.

NorthCarolina

Advocates at a candlelight vigil in Laurinburg.

If you would like to help us organize an advocacy event in this state, sign-up here.

North Dakota

Images from the North Dakota State House Event

Photo: Governor Jack Dalrymple (seated center), is surrounded by executive members of the ND Rare Diseases organization. From left to right, seated are George Perrin and Kathy Perrin co-founders of ND Rare Diseases. Back, left to right, Jodi Roller, Stacie Iken, Karel Sovak, Kathy Stromstad and Jayne Hardy.

Photo: Governor Jack Dalrymple (seated center), is surrounded by executive members of the ND Rare Diseases organization. From left to right, seated are George and Kathy Perrin.  Back row, Jodi Roller, Stacie Iken, Karel Sovak, Kathy Stromstad and Jayne Hardy.

2014: Community awareness and other advocacy events also occurred in the state.

Ohio

View the proclamation

2014: Community awareness events took place in Clairsville and Chillicothe.

If you would like to help us organize an advocacy event in this state, sign-up here.

Oklahoma

View the proclamation

Images from the Oklahoma State House Event

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Oregon

2014: Oregon Health & Science University hosted a Rare Disease Research Consortium. Learn More 

If you would like to help us organize an advocacy event in this state, sign-up here.

Pennsylvania

View the proclamation

2014: Community awareness events took place in Philadelphia and Johnstown.

If you would like to help us organize an advocacy event in this state, sign-up here.

Rhode Island

2014: A community awareness event occurred.

If you would like to help us organize an advocacy event in this state, sign-up here.

South Carolina

If you would like to help us organize an advocacy event in this state, sign-up here.

South Dakota

2014: Sanford Research hosted their 4th Annual Sanford Rare Disease Symposium. Learn More

If you would like to help us organize an advocacy event in this state, sign-up here.

Tennessee

View the proclamation

If you would like to help us organize an advocacy event in this state, sign-up here.

Texas

View the proclamation

2014: Community awareness and advocacy events took place across Texas including in Farmers Branch, Fort Worth, Austin, Prosper and Nacogdoches.

If you would like to help us organize an advocacy event in this state, sign-up here.

Rare disease advocate, Vernon Reed, proudly holds the Texas proclamation for Rare Disease Day. Photo courtesy of Hancock Photography

Rare disease advocate, Vernon Reed, proudly holds the Texas proclamation for Rare Disease Day. Photo courtesy of Hancock Photography

Utah

View the proclamation

Images from the Utah State House Event

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2014: A community awareness event also occurred.

Vermont

View the proclamation

If you would like to help us organize an advocacy event in this state, sign-up here.

Katie with VT proclamation

Katie with VT proclamation

Virginia

View the Proclamation

Images from the Virginia State House Event

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Virginia

2014: Community awareness events took place in Virginia Beach and Norfolk.

Washington

If you would like to help us organize an advocacy event in this state, sign-up here.

West Virginia

View the proclamation

2014: The West Virginia School of Osteopathic Medicine Internal Medicine Club organized a lecture about Living with Polycystic Ovarian Syndrome (PCOS).

If you would like to help us organize an advocacy event in this state, sign-up here.

Wisconsin

View the proclamation

2014: Advocacy and community awareness events occurred across the state.

If you would like to help us organize an advocacy event in this state, sign-up here.

Wisconsin

Bill Morris, Board Member of Snappin’ Ministries and Vice President at Ixonia Bank

Wyoming

If you would like to help us organize an advocacy event in this state, sign-up here.