Days To Go

0

0

0

Community Events

Since 2009, thousands of individuals have hosted awareness events across the United States that serve to raise awareness for rare diseases. We have compiled some helpful resources and ideas for advocates that are interested in getting involved for Rare Disease Day. If you decide to host an event, don’t forget to share it with us so that we can help promote it. 
 
Happy Planning!
Heroic Inner Kids

Resources for Events

This following document provides some ideas on the types of awareness events that could be hosted for Rare Disease Day. This resource was prepared by the Rare Action Network (RAN), the nation’s leading advocacy network. Learn more about RAN here.

Ideas for Awareness Events

This resource may be helpful to you while planning your event for Rare Disease Day. This resource was prepared by the Rare Action Network (RAN), the nation’s leading advocacy network. Learn more about RAN here.

Secrets to Hosting a Stress-Free Event

During your Awareness Event, you will likely be speaking to a large audience and sharing your personal story. The following resources are available to you so you can learn to write an effective speech and powerful story while understanding how to deliver it to make an impact.  The following resources were prepared by the Rare Action Network (RAN), the nation’s leading advocacy network. Learn more about RAN here.

How to Write an Effective Speech

How to Create an Elevator Pitch

How to Write a Patient Story

NORD has resources available for download to print for your event. Visit the press and resources page to download materials to share during your event.

If your event is open to the public, we welcome you to share it on this website to help drive registration. Visit this page on the website in order to share your event.

It is important to also share information about your event on social media to help drive registration and awareness for your event. For tips on how to utilize social media, click here.