Days To Go




Academic Events

Hosting a Rare Disease Day event in your local school, university or hospital is a great way to commemorate the day and raise awareness in your community. You can download the toolkits provided by NORD on this page. NORD may also be able to provide speakers through our Patient/Caregiver Speakers Bureau.

Andre celebrated Rare Disease Day in his classroom with Fulton County Schools Superintendent, Dr. Robert Avossa, Senator John Albers and Milton City Mayor Joe Lockwood. The Milton Herald newspaper was also there covering the event.

Tools and Resources to Help

Whether it’s a lobby tabling event or something more elaborate, recognizing Rare Disease Day in your hospital or medical center makes an important statement about commitment to rare disease patients. Read about what others have done and download helpful resources here.

How to Host a Medical Center Event

How to Host a Panel

Students organize Rare Disease Day events at campuses across the US. NORD is happy to help with suggestions, resources and – when possible – speakers. Campus events promote awareness and provide an important learning opportunity for students preparing for health-related careers.

How to Host a University Event

How to Host a Panel 

For the past several years, NORD has provided a curriculum supplement for high school teachers to download and use for Rare Disease Day that has been very well received. That resource is available here, along with other suggestions for high school students and teachers.

High School Curriculum

Children of all ages can learn important lessons about understanding and acceptance through Rare Disease Day events with an anti-bullying message or other age-appropriate themes. NORD welcomes the interest of parents and teachers in organizing classroom events and supports their efforts with downloadable resources.

Middle School Events & Activities

Elementary Events & Activities

Share Your 2017 Event

As the Official U.S. Sponsor of Rare Disease Day, NORD finds it important to share the reach of all events in the United States. We encourage you to share your events and activities with us by sending us a note at or by tagging us on social media.

If your event is open to the public and registration is available, we can help drive registration for your event by sharing it on this website.