Days To Go





How Are You Spending Rare Disease Day?

Tell the world! List your event by filling out this form. We will post it on the website here, share it on social media, and add it to the global calendar. We encourage you to join patients, families, parents, friends, caregivers, celebrities, athletes, scientists, physicians, researchers, health care providers, legislators, regulators, policy experts, teachers, classmates, industry, our team, and the entire world in raising awareness!

Rare kids take center court at the Utah Jazz game in 2015