Rare Disease Day is for everyone in the rare disease community. In 2013, events and activities take place all over the United States, view some of the 2013 events.
It is never too early to start planning for the next Rare Disease Day and there are many ways for individuals, organizations, and companies to participate. ! If you are hosting an event for 2014, we want to know about it, you can post your events here. For some ideas on how you can get involved, check out the suggested activities.
If you would just like to share how you observed the day in 2013 or are planning on observing the day in 2014, tell us on Facebook. We really appreciate hearing all of the ways people are promoting awareness … and your post may inspire others to do similar things!
State House Events
In 2013, we asked advocates across the country to consider organizing an event at their state house or capitol. This has been done in Massachusetts for the past two years, and it has proven to be an excellent way to educate state legislators about important issues that are decided at the state level. Learn more.