Countdown to Rare Disease Day

Alone we are Rare. Together we are Strong.

Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

2009 Successes

Thanks to the enthusiasm and support of all our Rare Disease Day Partners, the event was very successful in 2009 — the first year it was observed in the U.S. Highlights included:

  • More than 200 organizations, agencies, and companies signed on as Rare Disease Day Partners
  • Governors of 39 states issued proclamations
  • Many websites, newspapers, and other media published editorials, letters to the editor, stories, and blogs
  • Companies hosted events such as “Lunch & Learns” for their employees
  • Patient organizations organized networking events

We would like to thank our partners and friends who got involved in Rare Disease Day 2009 and made it a success. We learned a lot in our first year and are looking forward to spreading our message in 2010!