Any disease, disorder, illness
Did you know? Rare diseases are not so rare: there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children.
People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95% have no treatment with ZERO CURES.
Rare Disease Day® takes place on the last day of February each year. The main objective is to raise awareness with the general public and decision-makers about rare diseases and their impact on patients’ lives. You can make a difference: sign up to receive news and updates, start planning your event, and share feedback and ideas for next year.
- The final numbers are in! Check out what we were able to accomplish together in 2017 for #RareDiseaseDay! To view... https://t.co/5vP9xANzal
- RT @running4rare: Still time 2 join only charity marathon team devoted 2 entire #raredisease community. Apply 4 #ProvidenceMarathon: https:…
- RT @RareDiseases: Stay tuned on #NORD Facebook page for exciting opportunity! Follow us at: https://t.co/FzGcgqJaQp
- RT @running4rare: Our 1st ever race at @lamarathon is happening today to raise awareness for #rarediseases! Retweet to show support! https:…