Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.
Robert and Maria Bucci of Ridgewood, New Jersey have been on an arduous journey that began three years ago.
The Bucci’s want their story told, “so that we can lend our voices to so many who don’t have one. We would be honored to help raise awareness.”
This is as much about a rare …
More than 350 Partners have signed up with us to help spread the word about Rare Disease Day.
We used to have a scrolling list of them right here, but it got so long that this page was taking forever to load. You would have to stare at the list for quite a while to see everything.
It's a nice problem to have. Thank you everyone for making it happen!
Hemophilia Federation of America
The HFA hosted an Open House in Washington DC on February 25. All were welcome to attend. Stories were shared from the bleeding disorder community. Contact m.pascucci@hemophiliafed.org for more information.
Polka Dot Day
On February 19, the Mastokids.org encouraged people to show support of Rare Disease Day and pediatric mastocytosis by wearing Polka Dots, …
