Rare Disease Day is:
February 28, 2017
Any disease, disorder, illness
or condition affecting fewer than
200,000 people in the United States
is considered rare.
What is a Rare Disease?
Did you know? Rare diseases are not so rare: there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children.
People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95% have no treatment with ZERO CURES.
Rare Disease Day® takes place on the last day of February each year. The main objective is to raise awareness with the general public and decision-makers about rare diseases and their impact on patients’ lives. You can make a difference: sign up to receive news and updates, start planning your event, and share feedback and ideas for next year.
The global theme for Rare Disease Day 2017 is research. Research brings hope to people living with rare diseases. Learn more about the global theme and stay tuned for ways to get involved in the U.S.