There is never a bad time to share your story!
Write a letter to the editor or send a press release to a local newspaper. Sharing experiences helps people understand what it is like to live with a rare disease.
This press kit will make it easy for you to share the general theme and messages of the day, as well as your own story.
Read Highlights about the 2012 events!
In 2012 more than 50 events were submitted to the events page. These included medical symposium, concerts, films, and a broad range of community awareness events.
Let us know if you have any ideas for 2013 events.
It is never too early to start thinking about the next Rare Disease Day. View ideas:
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